Posts tagged ‘deafness ‘




Usher Syndrome

Information about Usher Syndromes. You want to know what is that mean. I am giving you the links.

Usher Syndrome

Information About Usher Syndrome

Night Blindness:

* Can’t see when coming in from bright sunlight
* Trips over things when light changes or light is dim
* Stays near a light in a dark room or at night
* Moves a speaker so light falls on face
* May express a desire to enter a room before it is darkened (movie theater, etc.)
* Avoids conversations in a darkened area
* When walking along a road at night, may appear to stagger or lose balance after an oncoming car has passed
* Has problems reading under some lights or in dimly lit areas

Glare sensitive:

* Squints and shades eyes in bright lights or fluorescent lighting – complains that the light hurts his/her eyes
* Likes to wear sunglasses even in buildings, but especially in bright sunlight
* Avoids participating in outdoor sports when the sun is very bright
* May appear awkward when exiting from the inside to the outside of a building (when faced with bright light)

Needs contrast:

* Has difficulty reading light copies or ditto copies
* Often spills when pouring liquids
* Can’t see stars at night

Restricted field:

* Startles easily
* Seems to hold eyes in a different direction when looking at some things (because of islands of vision)
* Turns head while reading across a page
* Uses finger to mark place while reading
* Can’t find small objects that have been dropped
* Fails to glance at another person’s handwaving from the side
* Bumps into people, tables, and chairs
* Stumbles on stairs and curbs
* Is quiet in a large group or may edge him/herself to one side when placed in a group
* Frequently fails to understand or misses groups instruction. Often relies on friends for information
* May appear to ignore others standing by his/ her side
* Prefers conversation at distances of 4 to 6 ft.

Problems with visual acuity:

* Holds book close to eyes, or bends to read
* Places face close to desk while writing
* Sits near blackboard

Balance problems:

* Can’t ride a bicycle
* Is considered clumsy
* Loses balance easily in the dark

Other:

* Frequently last in completing group activities
* Exhibits symptoms of anxiousness in new areas
* Often last to enter the room
* May have some repetitive behavior (seems to do the same things in the same ways, or continues to order the same things at lunch)
* May choose to stay home alone rather than be faced with the embarrassment of dealing with a new situation in the dark
* May appear unconcerned and may fail to fully participate in groups activities
* Frequently hesitates at the top or bottom of stairs (for orientation)
* Avoids walking or running in unfamiliar areas, especially when there is bright sunlight or when in a darkened area
* Appears to be constantly visually scanning a group

Hearing Loss in Usher Syndrome
Type l

* Children are born profoundly deaf or with just a little hearing in the low tones at loud levels of sound.
* Most but not all state that hearing aids help only a little or not at all.
* Some young children are showing benefit from cochlear implants.

The list is exactly what I was doing in the past. That is why my choice was a cochlear implant to hear. This helps my balance and I hear better. I plan to get bilateral cochlear implants after my childbirth.

My goal for Retinitis Pigmentosa can be treatment by stem cell research or retinal implant. Because I don’t want to get blind in the future and I admit that I don’t want to learn braille. I am so shy. I am still taking an Eye Vitamin supplements from Ocuvite® Lutein Eye Vitamin and Mineral Supplements . This is helping me postpone the blindness til late 40’s to 70’s. Now, I can’t take this supplement during pregnancy. That’s not good for my baby. I am taking a prenatal with DHA and Omega-3. The DHA with Omega-3 is helping promote health in our brains and eyes. After my childbirth I will take my preservision Eyes vitamin supplements again. I will never give it up.

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Add a comment January 29, 2010

Cochlear implants for Children and Adults Results

I realized that children are rate of higher than adults. I wish I could get cochlear implant when I was kid. Ohh well. This is interesting to know about cochlear implants’ success rates. I got source from my audiologist to show sign about success rate.

Please click the informations

Speech perception and speech intelligibility in children after cochlear implantation

Bilateral cochlear implantation in children

Improved speech perception in adult congenitally deafened cochlear implant recipients

Nucleus® Reliability Report 2007

Nucleus® Reliability Report 2008

Add a comment September 24, 2009

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