Posts filed under: ‘Technology‘




Usher Syndrome mother to be??

Many Deaf people tried to scare me to not get pregnancy. They said childbirth can cause my vision loss to get worse. I didn’t buy their stories. There is no proof of this. I have done research on the internet about Ushers Syndrome. This is not true that it affects the mother’s vision. That is no evidence. The devil wants to scare RP & US. I don’t believe that. I only trust God. I pray to God. I will not be blind after childbirth. I need my vision because I’m an artist and create jewelry. I love the beautiful colors!

I have a friend who has US like me. She asked me if would lose her vision during pregnancy and childbirth. I told her that’s not true. Other women are concerned about this. When my baby is with me. I will update my posts to let you know what’s going on. My friend asked me “Will your child be born deaf and US? No, my husband’s family have no deaf or blind. He does not carry the US gene. Both of my parents had to be carriers of the US gene. My husband’s DNA does not carry the US gene. My children will be carriers of the recessive genes. I believe my children will be hearing.

I found the article about usher syndrome mother. Usher’s Syndrome: Growing Up with a Deaf and Blind Mom A lady didn’t have hearing aids or cochlear implants. I did not want to be the same as her. I was concerned about not hearing my baby’s crying, cooing and other sounds. I could not hear with hearing aids. I thought I might know my baby crying with only a SA 101 Basic Remote Receiver with a light. I am not able to see the light when I am in the kitchen or bathroom. I did not want to trip over my small children because I can’t hear and not see well. My option was to get a cochlear implant so I would hear my baby’s crying, cooing and other sounds. I want to get a Graco imonitor Video Vibrating Baby Monitor or
Summer Infant Slim & Secure Handheld Video Monitor
. This is very important so I can know when my baby wakes up from nap.

My plan was to get cochlear implant before having children. It would be easy for me. God had a plan for me and my husband to have children after I received my implant. Thank god! I have a wonderful hearing husband. I don’t have to worry about not being able to hear anymore. It was gift from God.

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1 comment January 31, 2010

Activation (7/7/09)

I went to ENT for my activation.   I was so excited and anxious.   At first thing my audiologist put the sound processor on my left ear to see if the electrode array was working.    It worked fine.  I can feel the nerves in the left side of my face.  I signaled with my hand to show that I could hear and feel it.  Then the audiologist turned on sound, but was soft.  I felt dizzy from the sensations in my eyes and all around my head. It Startled me and I laughed, but It means that the implant is working fine.  This is my very first experience with that much sound.    I didn’t cry when it was too loud, but the audiologist started it again more softly and gradually increased the sound after that.  I heard the audiologist’s voice, then my husband’s voice.  My mom’s voice and my mother in the law’s voice came after that, and they were both crying.  They were all so happy.  I stayed there at the audiologist for 2 half hours.  When I left ENT and went  outside, I heard the wind moving the trees, and it made so much noise.  I can hear people when they are chat in on about things.   This is my first experience with sound.  When my husband started the car engine I could feel the vibration,  was able to hear it for the first time..

He turned on the Ipod for me to listen.  My first song was “Building A Mystery” by Sarah McLachlan the acoustic version and the second was “Hey There Delilah” by the Plain White T’s.  My Third was “A 1000 Miles” the acoustic version by Vanessa Carlton.  And the last was “What a Wonderful World” by Louis Armstrong.  It all was interesting!

The most annoying sounds are the toilet flush, a coffee grinder, and frappuccino blender at Starbucks.  My skin is still sensitive behind my ear from the surgery.   My Cochlear Implant processor is heavier than my previous hearing aid.

I visited my uncle and aunt for a little while.  My uncle played with a guitar for a couple of minutes, which I enjoyed quite nicely.  I played the piano and felt the sound.  I heard my dog’s bark for the first time and it is real loud.  She growled at the other dogs to.  Both my uncle and aunt are happy for me to hear sounds.  After I left their house I went to my sister in law’s apt briefly.    She was so excited for me.   She loves the cochlear implant look, and thinks it looks cool!  When she said “WOW!,” I could hear her beautiful voice.  Her good friend that was there loves my CI too.  Then we went to our friends’ house to show them my cochlear implant too.  I could hear their children’s voices.  I turned my head to look one of children crying when they fell on the floor sound, and it sounded like a thud.  The awesome sound was when I heard the cats purring.  My friend’s brother came to visit and saw my cochlear implant.   He too said, “I am happy for you” but I could understand through reading his lips.  I said “thank you.” And He said, “You’re welcome.”   And I understand him.  When I told my husband Chris that I can understand through lip reading, he was excited.

My husband and I went home and opened the box from the Cochlear Implant company.   I loved it!   I was so excited.  I would love to show off my cochlear implant and all the accessories.  The cochlear technology is so cool!   My impression of the Nucleus Freedom is good.   The Technician forgot my batteries and charger when I left ENT.   We will just have to pick it up tomorrow.

When my husband got accessories cord for the TV into the CI Processor, I was impressed with the long cord.  Plus it had volume on the cord, it was so great.     I heard people on the TV speaking.   I tried to lip-read from when people were speak.  My husband explained to me, how to listen and focus on the different voices.   I heard it’s different and was not the same.     Chris has a bad habit of tapping on the chair to get my attention and it startled me.   I told him I didn’t like that.  I was overwhelmed.  He was laughing.  I told him to call my name Jessica instead tap on me.     He gave me 6 different choices for a name he can call me.  Jessica, Jessie, Jessy, Jess, Sweetie and Honey.  I want him to repeat them so I could hear them a couple of times.  He said Je-ss-ica 3 times.  He said Je-ss-ie, Je-ss.  I was surprised.  But I was tired and had a long day!   And I had a great time.

2 comments July 9, 2009

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