Posts filed under: ‘cochlear implant‘




ASL-CI

I’m so impress this video from YouTube. My CI friend sent me of this video from Facebook inbox. So, I can show to my hearing family and friends to proof it. My second cousin’s son is deaf with bilateral cochlear implants and don’t know sign language. His ENT doctor didn’t allowed him to learn sign language real early when he was baby. His mom refused to learn sign language. That is sad! She and her parent thought cochlear implant make me hearing person. She told to hearing girl, “Jessica used to be deaf and she is hearing with CI.” No, I am still deaf! When I get my cochlear implant off and still deaf! The CI make me hard of hearing but I am still deaf! CI is not make me ban the ASL. I still love ASL and hear with CI! I want to show you this video. You can see children with bilateral cochlear implants use ASL.

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Add a comment February 8, 2010

Usher Syndrome mother to be??

Many Deaf people tried to scare me to not get pregnancy. They said childbirth can cause my vision loss to get worse. I didn’t buy their stories. There is no proof of this. I have done research on the internet about Ushers Syndrome. This is not true that it affects the mother’s vision. That is no evidence. The devil wants to scare RP & US. I don’t believe that. I only trust God. I pray to God. I will not be blind after childbirth. I need my vision because I’m an artist and create jewelry. I love the beautiful colors!

I have a friend who has US like me. She asked me if would lose her vision during pregnancy and childbirth. I told her that’s not true. Other women are concerned about this. When my baby is with me. I will update my posts to let you know what’s going on. My friend asked me “Will your child be born deaf and US? No, my husband’s family have no deaf or blind. He does not carry the US gene. Both of my parents had to be carriers of the US gene. My husband’s DNA does not carry the US gene. My children will be carriers of the recessive genes. I believe my children will be hearing.

I found the article about usher syndrome mother. Usher’s Syndrome: Growing Up with a Deaf and Blind Mom A lady didn’t have hearing aids or cochlear implants. I did not want to be the same as her. I was concerned about not hearing my baby’s crying, cooing and other sounds. I could not hear with hearing aids. I thought I might know my baby crying with only a SA 101 Basic Remote Receiver with a light. I am not able to see the light when I am in the kitchen or bathroom. I did not want to trip over my small children because I can’t hear and not see well. My option was to get a cochlear implant so I would hear my baby’s crying, cooing and other sounds. I want to get a Graco imonitor Video Vibrating Baby Monitor or
Summer Infant Slim & Secure Handheld Video Monitor
. This is very important so I can know when my baby wakes up from nap.

My plan was to get cochlear implant before having children. It would be easy for me. God had a plan for me and my husband to have children after I received my implant. Thank god! I have a wonderful hearing husband. I don’t have to worry about not being able to hear anymore. It was gift from God.

1 comment January 31, 2010

Good News!!!!!

My doctors started a new procedure so that they minimize the hear loss from the implantation. They tested me at my last appointment and I still have hearing in my ear with the implant. They don’t destroy the ears anymore. Thank god!!!! The technology is improve than before.

Add a comment September 24, 2009

My 1st program

I went to ENT for appointment this morning. I brought my both black & pink sound processors with me to audiologist. She put hook it on the computer and increased the map. I picked the sound to be loud and comfortable. I felt so satisfy. I can hear her soft voice. My husband fall sleep and snore. I heard his snore. We were laugh at him! He said, “I went to work at second shift and get off late and didn’t sleep enough.” My audiologist focuses on my sound. I heard my honey’s snore. LOL! I am doing well with my CI since last week. My audiologist likes my attitude with smile. I finished with appointment and left ENT. I heard the automatic door outside front of ENT. I heard the large truck passed on the road. I heard my husband’s coughing as well. He found playlist to hear the music on his ipod in the car. I heard the music and closed my eyes. My hands were clapping and can hear the rhythms. It made my husband cried and happy!!!

We came home. He used the PC and macbook for his homework. I was playing with my laptop and listen on ipod. Then I walked the kitchen and open the scrapbook. My hand grabs and pages the paper. I heard the background and saw my dog’s barking at the door. I told her stop it. She couldn’t stop bark. I told her SHUT UP! LoL My honey called me “Jessica” to get my attention. He talked to me about something with scrapbook and computer. He got ready for go work and drops me off at my mom’s house.

I heard my mom’s voice is loud. I turned my CI’s volume to low. It was sensitive sound. She was doing dishes in the kitchen. I heard something in background and ask my mom what is that? She thought it was my dog’s barking but not. She said, “How about the big dogs bark outside?” I said oh yeah! I walked to the door and saw the dogs bark together on the corner of fence. Then I heard the timer on oven.

I ate salad with a glass plate. I heard the sound of plates moving on the counter. My mom said it was a scooting sound.

I heard the sound of my chewing food.

I heard crunching when I ate croutons.

I heard a smacking noise from my lips as I drank my green tea.

I heard the sound of the Samaritan Helicopter idling. It’s engine on top of Hospital. That’s a long way from here and I heard it! Also I heard airplane’s sound. I was so THRILLED!!! It was my first time to hear much sound that I never heard.

I heard the page of this pad. I came to outside and heard the bird’s whistles. It was amazing!!!! I got home and took my CI off for rest. I was doing with blog. I was so joy the sounds!!!!

3 comments July 15, 2009

3 to 7 days

I was doing laundry. I woke my honey up from late in the afternoon. I took off my CI and hearing aid for a moment. The washer and spinning were LOUD! My husband’s wishing to have HE washer/dryer with silent sound. I grabbed the Aleve for headache relieve. When the pain is goes away. I put CI on. I felt so much better.

I made chicken & artichoke pizza for dinner. I heard many noise with metal stuff. It was pizza sheet’s sound on the counter and adds the topping on it. I put the pizza in the oven and heard the rack in oven. After I took it out of oven and does pizza’s slice cut with sound. It was interesting.

4 days

I heard something and asked Chris what is that? He said, “It was AC vents.” I was saying ohm. We went to Firefly Coffeehouse for his study. I was playing with my laptop and listen music on ipod. I heard people chattering. We came home. He got ready for go work. I was listens the music on ipod. I did with iron for Chris’ uniform. I made a creamy chicken and artichoke soup. The artichoke is my favorite!

5 days, my husband left out of town in early morning. He sent me blackberry instant messenger to let me know. He wanted me to put CI on before storm and rain come. I got up at 9:15. I missed to hear the storm and rain. It was passed. Darn it! I am looking forward to hear rain’s sound again this week. My dog started to howl real LOUD! It drove me crazy! LOL I forget my moleskin left at my mom’s house. I sent a text message to her. To remind her bring the moleskin to her work. I need to replace the new moleskin. I went to mall and meet my mom’s work. I rode on the bus to mall. I heard the noise. I stopped by my mom’s work to see what is up. Her co-workers are happy for me to hear with CI. My hair was down the time. I walked around the mall until my mom got off work. She drove and drops me off at home. I let my dog out pee. I wanted to listen the ipod while I making man’s bracelet with macramé.

My honey came home from work and saw my dance with ipod. He was big smile and crying. We went to mall. I bought a new pink purse to fix for my laptop and stuff. We walked around the mall. We went to his friend’s house for a little while. I took my hearing aid off from my right ear. Because my right brain was headache and my left brain with ci isn’t headache. It was an opposite.

6 days, my honey and I went to his friend’s house for visit. I met a new friend of my honey’s friend from high school. She played on her bass guitar. I was enjoying the sound of bass guitar. She is nice lady! I was so tired and go home.

7 days later, I turned my CI on P3 in silent room. I heard my dog’s chewing with her greenie. I held the greenie and let her chewing. It was interesting.

Add a comment July 15, 2009

Activation (7/7/09)

I went to ENT for my activation.   I was so excited and anxious.   At first thing my audiologist put the sound processor on my left ear to see if the electrode array was working.    It worked fine.  I can feel the nerves in the left side of my face.  I signaled with my hand to show that I could hear and feel it.  Then the audiologist turned on sound, but was soft.  I felt dizzy from the sensations in my eyes and all around my head. It Startled me and I laughed, but It means that the implant is working fine.  This is my very first experience with that much sound.    I didn’t cry when it was too loud, but the audiologist started it again more softly and gradually increased the sound after that.  I heard the audiologist’s voice, then my husband’s voice.  My mom’s voice and my mother in the law’s voice came after that, and they were both crying.  They were all so happy.  I stayed there at the audiologist for 2 half hours.  When I left ENT and went  outside, I heard the wind moving the trees, and it made so much noise.  I can hear people when they are chat in on about things.   This is my first experience with sound.  When my husband started the car engine I could feel the vibration,  was able to hear it for the first time..

He turned on the Ipod for me to listen.  My first song was “Building A Mystery” by Sarah McLachlan the acoustic version and the second was “Hey There Delilah” by the Plain White T’s.  My Third was “A 1000 Miles” the acoustic version by Vanessa Carlton.  And the last was “What a Wonderful World” by Louis Armstrong.  It all was interesting!

The most annoying sounds are the toilet flush, a coffee grinder, and frappuccino blender at Starbucks.  My skin is still sensitive behind my ear from the surgery.   My Cochlear Implant processor is heavier than my previous hearing aid.

I visited my uncle and aunt for a little while.  My uncle played with a guitar for a couple of minutes, which I enjoyed quite nicely.  I played the piano and felt the sound.  I heard my dog’s bark for the first time and it is real loud.  She growled at the other dogs to.  Both my uncle and aunt are happy for me to hear sounds.  After I left their house I went to my sister in law’s apt briefly.    She was so excited for me.   She loves the cochlear implant look, and thinks it looks cool!  When she said “WOW!,” I could hear her beautiful voice.  Her good friend that was there loves my CI too.  Then we went to our friends’ house to show them my cochlear implant too.  I could hear their children’s voices.  I turned my head to look one of children crying when they fell on the floor sound, and it sounded like a thud.  The awesome sound was when I heard the cats purring.  My friend’s brother came to visit and saw my cochlear implant.   He too said, “I am happy for you” but I could understand through reading his lips.  I said “thank you.” And He said, “You’re welcome.”   And I understand him.  When I told my husband Chris that I can understand through lip reading, he was excited.

My husband and I went home and opened the box from the Cochlear Implant company.   I loved it!   I was so excited.  I would love to show off my cochlear implant and all the accessories.  The cochlear technology is so cool!   My impression of the Nucleus Freedom is good.   The Technician forgot my batteries and charger when I left ENT.   We will just have to pick it up tomorrow.

When my husband got accessories cord for the TV into the CI Processor, I was impressed with the long cord.  Plus it had volume on the cord, it was so great.     I heard people on the TV speaking.   I tried to lip-read from when people were speak.  My husband explained to me, how to listen and focus on the different voices.   I heard it’s different and was not the same.     Chris has a bad habit of tapping on the chair to get my attention and it startled me.   I told him I didn’t like that.  I was overwhelmed.  He was laughing.  I told him to call my name Jessica instead tap on me.     He gave me 6 different choices for a name he can call me.  Jessica, Jessie, Jessy, Jess, Sweetie and Honey.  I want him to repeat them so I could hear them a couple of times.  He said Je-ss-ica 3 times.  He said Je-ss-ie, Je-ss.  I was surprised.  But I was tired and had a long day!   And I had a great time.

2 comments July 9, 2009

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