Usher Syndrome mother to be??

January 31, 2010 Bionic Geek chic
Tags: , , , , , , , ,

Many Deaf people tried to scare me to not get pregnancy. They said childbirth can cause my vision loss to get worse. I didn’t buy their stories. There is no proof of this. I have done research on the internet about Ushers Syndrome. This is not true that it affects the mother’s vision. That is no evidence. The devil wants to scare RP & US. I don’t believe that. I only trust God. I pray to God. I will not be blind after childbirth. I need my vision because I’m an artist and create jewelry. I love the beautiful colors!

I have a friend who has US like me. She asked me if would lose her vision during pregnancy and childbirth. I told her that’s not true. Other women are concerned about this. When my baby is with me. I will update my posts to let you know what’s going on. My friend asked me “Will your child be born deaf and US? No, my husband’s family have no deaf or blind. He does not carry the US gene. Both of my parents had to be carriers of the US gene. My husband’s DNA does not carry the US gene. My children will be carriers of the recessive genes. I believe my children will be hearing.

I found the article about usher syndrome mother. Usher’s Syndrome: Growing Up with a Deaf and Blind Mom A lady didn’t have hearing aids or cochlear implants. I did not want to be the same as her. I was concerned about not hearing my baby’s crying, cooing and other sounds. I could not hear with hearing aids. I thought I might know my baby crying with only a SA 101 Basic Remote Receiver with a light. I am not able to see the light when I am in the kitchen or bathroom. I did not want to trip over my small children because I can’t hear and not see well. My option was to get a cochlear implant so I would hear my baby’s crying, cooing and other sounds. I want to get a Graco imonitor Video Vibrating Baby Monitor or
Summer Infant Slim & Secure Handheld Video Monitor
. This is very important so I can know when my baby wakes up from nap.

My plan was to get cochlear implant before having children. It would be easy for me. God had a plan for me and my husband to have children after I received my implant. Thank god! I have a wonderful hearing husband. I don’t have to worry about not being able to hear anymore. It was gift from God.

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Entry Filed under: Blinds,children,cochlear implant,Deaf,DNA,hear,Hearing,hearing aids,Retinitis pigmentosa,Technology,Usher Syndrome

One Comment Add your own

  • 1. 5kidswdisabilities  |  January 31, 2010 at 8:56 pm

    YOU GO GIRL!!!! You will have a beautiful baby for sure and you have what it takes to be a great mother. I am happy for you. Children add a great deal to one’s life.
    Lindsey Petersen
    http://5kidswdisabilities.wordpress.com


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